Reading the End-of-life Controversy through Political Lenses: Public Power and Intimacy

Anna Durnová

Abstrakt

This article presents end-of-life controversies as a site through which we can disclose the operation of public power. Reviewing some recent political negotiations on end-of-life decisions (such as withdrawal treatment or the legalization of euthanasia), the article investigates the particular role that an intimate experience with the end of life plays in those political negotiations. As the collective acknowledgement of the individual emotional experience with body and mind during the end of life, intimacy enables us to conceive the nature of public power in the mutual engagement between the collective and the individual. Since this has an impact on the dynamic of political negotiations, the article concludes by suggesting that Western liberal democracies are facing not a disappearance of politics but a transformation of public power through intimacy.

Klíčová slova

biopolitics; discourse; end of life; intimacy; public power; Foucault; interpretive political science

Plný Text:

Mobi (English) ePub (English)

Reference

Zobrazit literaturu Skrýt literaturu

Agamben, Giorgio. 1998. Homo Sacer. Stanford: Stanford University Press.

Amundsen, Darrel W. 1989. “Suicide and Early Christian Values.” Pp. 77‒154 in Suicide and Euthanasia: Historical and Contemporary Themes, edited by Baruch A. Brody. Dordrecht: Kluwer Academic Publishers. https://doi.org/10.1007/978-94-015-7838-7_4

Annas, George J. (1995). “The Right to Die in America: Sloganeering from Quinlan and Cruzan to Quill and Kevorkian.” Duqesne Law Review 34(4): 875‒897.

Ariès, Philippe. 1980. L’homme devant la mort. Paris: Le Seuil.

Berger, Peter L. 1969. The Sacred Canopy: Elements of a Sociological Theory of Religion. Garden City: Doubleday.

Carpentier, Nico and Leen Van Brussel. 2012. “On the Contingency of Death: A Discourse-Theoretical Perspective on the Construction of Death.” Critical Discourse Studies 9(2): 99‒115. https://doi.org/10.1080/17405904.2012.656372

Clark, David. 2002. “Between Hope and Acceptance: The Medicalisation of Dying.” British Medical Journal 324: 905‒907. https://doi.org/10.1136/bmj.324.7342.905

Connolly, William E. 2013. The Fragility of Things: Self-organizing Processes, Neoliberal Fantasies, and Democratic Activism. Durham, NC: Duke University Press. https://doi.org/10.1215/9780822377160

Dean, Mitchell. 2010. Governmentality: Power and Rule in Modern Society. London: SAGE Publications.

Douglas, Mary. 1966. Purity and Danger. London: Routledge & Kegan Paul.

Dryzek, John S. 1993. “Policy Analysis and Planning: From Science to Argument.” Pp. 213‒232 in The Argumentative Turn in Policy Analysis and Planning, edited by Frank Fischer and John Forester. Durham, NC: Duke University Press. https://doi.org/10.1215/9780822381815-010

Durkheim, Émile. 1971. The Elementary Forms of the Religious Life. London: Allen & Unwin.

Durnová, Anna and Herbert Gottweis. 2009. “Politik zwischen Tod und Leben”. Pp. 273‒303 in Bios und Zoe. Die menschliche Natur im Zeitalter ihrer technischen Reproduzierbarkeit, edited by Martin Weiß. Frankfurt/M.: Suhrkamp.

Durnová, Anna. 2011a. “Feldforschung Intim: Von Erlebnissen, Bedeutungen und Interpretationspraxis in der Politikfeldanalyse.” Österreichische Zeitschrift für Politikwissenschaft 4: 417‒432.

Durnová Anna. 2011b. “Diskurzivní přístupy v Policy Analysis.” Pp. 64‒104 in Současné metodologické otázky veřejné politiky, edited by Martin Nekola, Hanna Geißler and Magdalena Mouralová. Praha: Karolinum.

Durnová, Anna. 2013. “Governing Through Intimacy: Explaining Care Policies through ‘Sharing a Meaning.’” Critical Social Policy 33(3): 494‒513. https://doi.org/10.1177/0261018312468305

Engeli, Isabelle, Christoffer Green-Pedersen and Lars T. Larsen. 2012. Morality Politics in Western Europe: Parties, Agendas and Policy Choices. London: Palgrave Macmillan. https://doi.org/10.1057/9781137016690

Foucault, Michel. 1997. “Il faut défendre la société” cours au Collège de France, 1975-1976. Paris: Gallimard le Seuil.

Foucault, Michel. 2008. Le Gouvernement De Soi Et Des Autres Cours Au Collège De France, 1982-1983. Paris: Gallimard Le Seuil.

Giddens, Anthony. 1992. The Transformation of Intimacy. Cambridge: Polity.

Green-Pedersen, Christoffer. 2007. “The Conflict of Conflicts in Comparative Perspective: Euthanasia as a Political Issue in Denmark, Belgium, and the Netherlands.” Comparative Politics 39(3): 273‒291.

Hajer, Maarten and Hendrik Wagenaar. 2003. “Introduction.” Pp. 1‒30 in Deliberative Policy Analysis: Understanding Governance in the Network Society, edited by Maarten Hajer and Hendrik Wagenaar. Cambridge: Cambridge University Press. https://doi.org/10.1017/CBO9780511490934.002

Howarth, David. 2010. “Power, Discourse, and Policy: Articulating a Hegemony Approach to Critical Policy Studies.” Critical Policy Studies 3(3‒4): 309‒335. https://doi.org/10.1080/19460171003619725

Gottweis, Herbert. 1998. Governing Molecules: The Discursive Politics of Genetic Engineering in Europe and the United States. Cambridge, MA: MIT Press. https://doi.org/10.7551/mitpress/3334.001.0001

Hochschild, Arlie R. 2003. The Commercialization of Intimate Life: Notes from Home and Work. Berkeley: University of California Press.

Inglehart, Ronald F. 2008. “Changing Values among Western Publics from 1970 to 2006.” West European Politics 31(1‒2): 130‒146. https://doi.org/10.1080/01402380701834747

Kaufman, Sharon and Lynn Morgan. 2005. “The Anthropology of the Beginnings and Ends of Life.” Annual Review of Anthropology 34(1): 317‒341. https://doi.org/10.1146/annurev.anthro.34.081804.120452

Kearl, Michael. 1989. Endings: Sociology of Death and Dying. Oxford: Oxford University Press.

Kübler-Ross, Elisabeth. 2009. On Death and Dying: What the Dying Have to Teach Doctors, Nurses, Clergy and Their Own Families. New York: Routledge. https://doi.org/10.4324/9780203889657

Lemke, Thomas. 2003. “Rechtsubjekt oder Biomasse? Reflexionen zum Verhältnis von Rassismus und Exklusion.” Pp. 160‒179 in Biopolitik und Rassismus, edited by Martin Stinglein. Frankfurt/M.: Suhrkamp Verlag.

Lupton, Deborah. 2012. Medicine as Culture: Illness, Disease and the Body in Western Societies. London: SAGE. https://doi.org/10.4135/9781446254530

Malý, Tomáš. 2011. “Rituál smrti a Sociální praxe ve věku konfesí, Historicko - antropologická perspektiva.” Sociální studia 8(2): 15‒23.

Martin, E. 2001. The Woman in the Body: A Cultural Analysis of Reproduction. Boston: Beacon Press.

Memmi, Dominique. 2003. “Governing through Speech: The New State Administration of Bodies.” Social Research 70(2): 238‒251.

Mueller, Paul S. 2009. “The Terri Schiavo Saga: Ethical and Legal Aspects and Implications for Clinicians.” Polskie Archiwum Medycyny Wewnętrznej 119(9): 574‒581. https://doi.org/10.20452/pamw.771

Murray, Stuart J. 2006. “Thanatopolitics: On the Use of Death for Mobilizing Political Life.” Polygraph 18: 191‒215.

Nettleton, Sarah. 2000. “Governing the Risky Self: How to Become Healthy, Wealthy and Wise.” Pp. 207‒222 in Foucault, Health and Medicine, edited by Alan Petersen and Robin Bunton. London and New York: Routledge.

Noys, Benjamin. 2005. The Culture of Death. Oxford and New York: Berg Publishers.

Quill, Timothy E. 2005. “Terri Schiavo ‒ a Tragedy Compounded.” New England Journal of Medicine 352(16): 1630‒1633. https://doi.org/10.1056/NEJMp058062

Rose, Nikolas. 2007. The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-first Century. Princeton, NJ: Princeton University Press. https://doi.org/10.1515/9781400827503

Roseneil, Sasha and Shelley Budgeon. 2004. “Cultures of Intimacy and Care Beyond ‘The Family’: Personal Life and Social Change in the Early 21st Century.” Current Sociology 52(2): 135‒159. https://doi.org/10.1177/0011392104041798

Roseneil, Sasha. 2010. “Intimate Citizenship: A Pragmatic, Yet Radical, Proposal for a Politics of Personal Life.” European Journal of Women’s Studies 17(1): 77‒82. https://doi.org/10.1177/13505068100170010603

Schicktanz, Silke, Aviad Raz and Carmel Shalev. 2010. “The Cultural Context of Patient’s Autonomy and Doctor’s Duty: Passive Euthanasia and Advance Directives in Germany and Israel.” Medicine, Health Care and Philosophy 13(4): 363‒369. https://doi.org/10.1007/s11019-010-9262-3

Sexton, Richard, E. and Virginia Staudt Sexton. 1982. “Intimacy, a Historical Perspective.” Pp. 1‒23 in Intimacy, edited by Martin Fischer and George Stricker. Plenum Press: New York and London. https://doi.org/10.1007/978-1-4684-4160-4_1

Vido, Roman. 2011. “Smrt blízká či vzdálená?” Sociální Studia 8(2): 7‒12.

Yanow, Dvora. 2007. “Interpretation in Policy Analysis: On Methods and Practice.” Critical Policy Analysis 1: 110‒122. https://doi.org/10.1080/19460171.2007.9518511

Zelizer, Viviana. 2005. Purchase of Intimacy. Princeton, NJ: Princeton University Press.

https://doi.org/10.5817/SOC2016-1-87